Category: me/cfs journal

It takes an unmusterable amount of discipline to be sick: Breakfast must not happen until 20 minutes after round 1. Two medications smell and tastes disgusting, and, even better, you don’t just have to swallow them, but NO THEY ALSO GIVE YOU STOMACH GAS SO YOU HAVE YOUR BURP A LOT FOR THE NEXT 7… Continue reading May 6, 2025: The Disciplining

There’s a way where being chronically ill removes humanness from you, peels it away like onion layers.  I saw a screenshot of a tweet on Reddit earlier today that went something like, “you go see a doctor, tell them you’re sick, and they go, ‘ughhhhhhhhh’,” and I think that’s not funny because it’s true.  On… Continue reading May 5, 2025: The Unhumaning

One late fall morning, you wake up and everything is the usual, until you want to get dressed and realize your entire life has gotten so small, you don’t fit into it anymore, no matter how much you wiggle and squeeze and tuck and suck in your belly. And yet, it’s still the only life… Continue reading April 22, 2025: The Smallening

The helplessness  The first one to say it was my general practitioner, a young, blonde woman with hair in a ponytail, oval glasses, and eyebrows that are always raised in an inquisitive facial expression: “I don’t know what to do at this point.” The next was my therapist, in a highly uncharacteristic Columbo moment, only… Continue reading April 15, 2025: The helplessness