About

I’m a woman in my 30s, live in Europe, and I write about living with ME/CFS here, or at least about trying to live.

It’s hard to talk about myself without it becoming a list of used-to’s, things I used to be, enjoy, do, that have now been replaced with being chronically ill at all times, and on most days, not feeling like I’m much else beyond. Other than that, though, I like to bake, take care of plants, write, and paint whenever I can.

I write under a pen name here because it’s complicated.

How I’m doing

I’ve been increasingly sick with what I now know is ME/CFS for over three years now. I’m now somewhere between moderate and the milder end of severe (Bell scale: 20-40, it fluctuates), overall still worsening. In addition, I have been diagnosed with ADHD and POTS.

How I got ME/CFS

Most likely, it was triggered by my first COVID-19 infection in early 2022. While the infection was mild, I never got back to the level of health and fitness I had before it. I’ve never been well again.