I’m in so much pain. My muscles and joints are screaming.. Today, I stopped the tilidine altogether – I suspect increasingly that it’s behind the insane tiredness, but also that the intense itching all over my body (head! Fingers! Legs! Back! Head again!) is caused by it too. (For the last week or so, I thought it was just mosquitoes, until I realized that I barely have any bites.)
I feel like shit. Today is a Monday which means work day which means nine minutes until my next two meetings start. The last 3.5 hours since my last meeting, i just slept and slept.
I don’t know where to go from here. My new GP is useless, others are even harder to find: i emailed the neurologist at the clinic about going there sooner than our August 1 appointment, but only got an auto response so far and don’t expect they’ll even get back to me beyond that. I won’t see my pain doc until August. I also can’t really talk about this to people in my personal life, most have a bunch of their own shit going on and no one can do anything in any case.
I googled around for doctors, but it’s impossible to say who’s decent, especially for ME/CFS. And I wouldn’t even know what to tell them – that I have ME/CFS but probably just or also RLS and no treatment seems to work? Fuck knows. I feel so stuck.